Dear all, hope you are well. Sorry I haven't been on much. I know so many others are suffering so much more than me and I am sorry to post. The gp phoned Fri with my bloods to tell me my liver and kidneys were failing and that I was seriously ill. I had my hosp appt on the Weds and knew things were not right. It was still a shock. Am waiting for a scan and hime to tell me more abnormal bloods tomorrow. I went out for an hour today and hosp phoned in the emantime, I have no idea what they wanted and can't call back.l So frustrating.



Has anyone else had experience of this? They think it is autoimmune as my liver function stabilised when they raised my steroids for a flare. I am finding it all a bit much.

Would appreciate any support, sorry to ask when so many others are having such a hard time.

Deb x

Hi Debbie

I'm sorry the GP told you over the phone, it was rather insensitive, and bound to make you think the worst. I hope by now you've been able to speak to him and he's put your mind at rest.

There is no need to apologise, this is what the forum is for, to share your worries and thoughts with others.

Lyn

Oh Debbie! Please do not apologise, I think being told you are seriously ill qualifies you to ask for support!
We are always here to give support no matter how trivial anyone thinks their complaint is.
It must have been such a shock for you, even though you must have been feeling very unwell. I hope you managed to get some sleep last night.
Jenni should be able to help with your worries, having been through it herself.
I hope you can get some rest today and if you feel you can't wait till tomorrow to speak to your GP, ring him today and get him to explain things to you.

Sending lots of love and hugs,
Doreen xx

Hi Deb,

sorry you have had such a shock, it must have been a bit scary to be given the news over the phone. I'm glad you don't have to wait too long for the scan and pleased that Jenni has reassured you. I have had serious kidney problems (related to RA meds) but my kidney function is normal now

Have a nice evening with your hubby.
Thinking of you
love Diane x

Dear Deb, I just read your post.
I am so pleased that you have your husband coming home, he will be
a great support to you while this is sorted out.
I don't know much about all the different R.A meds, as I have only ever
taken Hydroxychloriquine, but I have noticed on this site that many people
have had problems due to meds and that once the medication is reviewed
the problems start to get better again.
Hoping that your sorted out promptly by the Hospital and sending you
warm thoughts,
Fiona

Hi Debbie,

Sorry to hear that the hospital has been so insensitive. I'm glad you were able to have a chat with Jenni as Eleanor has said she knows the score.

The liver is a very forgiving organ and under the right circumstances tends to repair itself. I know it's easier said than done, but try not too worry too much. Although the hospital were insensitive, it sounds like they are being thorough.

Take care,

love,

Barbara
XXXXXX

Hi Debbie, so glad you have spoken to jenni, she has been through so much, and has so much knowledge. What an insensitive gp! to tell you on the phone too. I hope the scan goes well. Thinking of you, take care x

Thank you all for your replies. I am feeling much calmer and more positive about the whole thing.

Deb x